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Member Forums  »  General Discussion  »  Ehlers Danlos Syndrome EDS Post reply
 12-04-2008 04:30:15 AM
Eboni
Eboni
From: United States

I live with the pain of this EDS everyday. I know not meny of you have heard of this disorder so I wanted to share some information with all of you. Please feel free to ask me questions if you have any.

This is taken from www.ednf.org
Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue.

Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. Each type of EDS is a distinct disorder that "runs true" in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS.

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 12-04-2008 07:24:27 AM
Jon
Jon
From: New Zealand

I have never heard of EDS, and so my comments are from what you have written.
Have you tried cell salt No. 6, it is a cell metabiliser and re-builder.

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 13-04-2008 10:28:17 AM
Helen
Helen
From: United Kingdom

I had never heard of this before either, Eboni.

Have you suffered from it all your life, or is it something that 'developed'? If it is the latter, how old were you when it started?

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 30-04-2008 04:19:25 PM
Eboni
Eboni
From: United States

EDS is something you are born with and gets worse as you get older. I think holistic health is the best way to treat this disorder. I am going to school for holistic health. One of my classmates showed me this link:

http://cat.inist.fr/?aModele=afficheN&cpsidt=16375082

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 30-04-2008 08:07:40 PM
Jon
Jon
From: New Zealand

Eboni, have you looked into homeopathy, they have protocols that deal with active miasms, which are basically inherited disorders.

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